Most of today’s medical data are hidden in isolated databases, stored in systems that are often incompatible, and managed by proprietary software. This can slow down medical progress, as technologies that rely on these data cannot be used to their fullest potential to benefit elucidation and understanding of disease biology or potential treatment options. Additionally, patients that want to seek a second opinion and need to share their medical records with providers at different institutions are facing significant challenges to do so.

You’re invited to participate and contribute to a session at PMWC Silicon Valley 2020, to kick-start an initiative to remove the obstacles that are holding back the full potential of big data, AI and ultimately, precision medicine. We realize that this is a huge problem with numerous issues so we’re focusing the scope of the session on the top three limiting barriers.

Please help us prioritize the barriers by voting for the top three from the following list:

 Current medical records and data sharing approaches are not globally scalable
 EHR systems do not provide ALL data allowed by HIPAA
 Hospitals are blind to wellness and chronic disease care at community clinics
 Lack of accurate understanding of individuals’ right under HIPAA to access their health information
 Lack of business processes and workflows that enable seamless provision of healthcare across institutions
 Lack of hospital best practices for release of patient data
 Lack of interoperability for international cooperation
 Lack of medical communication interoperability
 Lack of research interoperability
 Lack of semantic interoperability
 Lack of syntactic interoperability
 Lack of technical interoperability

Thank you for helping us focus on the most relevant aspects by identifying the top three challenges for data access and use: please email back your top selections (copy/paste from the list above).

Effective and successful advancement of precision medicine is highly dependent on interoperable and standardized data and systems. As the leading precision medicine conference, PMWC 2020 Silicon Valley has scheduled a series of relevant discussions with experts and key opinion leaders across research, medical, and technology sectors that help define the future of our healthcare system and precision medicine in particular.

PMWC 2020 Silicon Valley sessions that center around interoperability, patient rights, data sharing, and data ownership include:
• Driving Toward Value-based Care (panel): There is a massive amount of data that needs to be shared and made accessible to improve survival outcomes and quality of life for patients. The panel, which is chaired by Stanley Huff (Intermountain Healthcare), will address the various areas of interoperability for value-based care.
o Panelists: Janet Campbell (Epic), Jeffrey Danford (Allscripts), and Matt Obenhaus (Cerner).
• The Participant at the Center (panel): Increasingly, patients are seizing greater control to get access to their health information in order to contribute their data directly to research initiatives. This panel, chaired by Premal Shah (Ciitizen), will showcase initiatives that are putting patients in the driver’s seat.
o Panelists: Dawn Barry (LunaDNA), Sharon Terry (Genetic Alliance Registry & Biobank), and Bray Patrick-Lake (Evidation Health).
• How Patients Get What They Need: The latest treatment options are not an option if you can’t access or afford them. The session, chaired by Eric Marton (Wavemaker 360), will discuss novel strategies that top doctors use to access breakthrough tests and therapies for their patients through clinical trials, expanded access and contingent reimbursement.
o Speakers: June Wasser, (Consultant), Martin Naley (OctX), Conard Vial (Sutter Health), Mariya Filipova (Anthem), and Maurie Markman (CTCA Health).
• Summary for Patients: So What – Putting it All Together (panel): For nearly a decade, non-profit Cancer Commons has helped thousands of patients and their physicians beat the odds with information about the latest developments and treatment options. New software and industry partnerships are taking this initiative to the next level, where treatment decisions are informed by the latest technological advancements, a treatment’s accessibility, and the collective experience of all patients and physicians. This panel is chaired by Marty Tenenbaum (Cancer Commons).
o Panelists: Carla Grandori (SEngine Precision Medicine), Mika Newton (xCures), Conan Kinsey (Huntsman Cancer Center), Jim Snyder (Henry Ford Health System), Erika Monteverdi (Cancer Commons), and Harvey Cohen (Stanford University).

Register today for participation at PMWC January 21-24th so you don’t miss out on this unique opportunity during a time of rapid developments in the field of precision medicine. Learn from thought leaders and key stakeholders in the industry. Hear how advancements in areas such as interoperability, data ownership, patient rights, but also pharmacogenomics, cardiovascular disease, and artificial intelligence/machine learning are all shaping the future of patient care.

I am looking forward to welcoming you in a couple of weeks, in Silicon Valley, and to the many exciting presentations and discussions through which we plan to share and advance knowledge for the benefit of improved precision medicine-based care in today’s clinical setting.