MA, CEO, Genetic Alliance
Biography
Sharon F. Terry is President and CEO of Genetic Alliance, an enterprise engaging individuals, families and communities to transform health. As ‘just a Mom’ with a master’s degree in theology, she cofounded PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE), in response to the diagnosis of PXE in her two children in 1994. She is the author of 150 peer-reviewed papers, of which 30 are clinical PXE studies. Her story is the topic of her TED Talk and TED Radio Hour. In her focus at the forefront of consumer participation in genetic research, services and policy, she serves in a leadership role on many of the major international and national organizations. Terry is an Ashoka Fellow. She is an avid student and facilitator of Gestalt Awareness Practice. Her joy in life is her daughter and son, their wives, and her granddaughter.
Session Abstract – PMWC 2023 Silicon Valley
Track 3 - January 27 9.00 A.M.-4.15 P.M.
Track Chairs:
Sharon Terry, Genetic Alliance & Alice Rathjen
- PMWC 2023 Award Ceremony:
Pioneer Honoree: David Bentley, Ilumina
- Learnings and Advancements of Population Studies (PANEL)
Chair: Sharon Terry, Genetic Alliance
- David Bentley, Illumina
- Slavé Petrovski, AstraZeneca
- Andrea Ganna, FinnGen
- Robert Wildin, University of Vermont Health
- Alexander Charney, Mount Sinai - Precision Medicine in Understudied Populations
- Ryan Taft, Illumina
- Aimé LUMAKA, WALGEMED - Building Future Precision Care in Qatar
Chair: Khalid Fakhro, Sidra Medicine
- Ziyad M. Hijazi, Sidra Medicine
- Edison T. Liu, The Jackson Labs
- Challenges and Opportunities for National Precision Medicine Initiatives (PANEL)
Chair: Alessandro Riccombeni, Microsoft UK
- Catalina Lopez-Correa, Genome Canada
- Khalid Fakhro, Sidra Medicine
- Framework to Improve the Translation of Genomics into the Clinic (PANEL)
Chair: Kathleen Barnes, Tempus Labs
- Carlos Bustamante, Galatea Bio
- Ora Gordon, Providence
- Abasi Ene-Obong, 54gene - Identifying Relationships Between Disparate Data Sets to Monitor and Control Pathogen Outbreak (PANEL)
Chair: Charles Chiu, UCSF
- Amy Kirby, CDC
- Smruthi Karthikeyan, Caltech - Increasing Diversity in Population Studies
- Manual Rivas - Global Biobank Engine, Stanford Rivas Lab
- The Missing Diversity in Human Epigenomic Studies
- Charles E. Breeze, National Cancer Institute
- The Transition from Genomics to Phenomics in Precision Population Health
- Lee Hood, Phenome Health
